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Cystic fibrosis dating other people with cystic fibrosis

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Because of this, logistically, we have to acknowledge that when we engage in closer, intimate relationships – these people now become part of our support system and ultimately have to learn about and understand what we need to do to maintain healthy outcomes.

Each person’s decision as to when and how to include their partner is quite individualized.

It didn't take long for these computer sessions to grow into much more for Samantha and Brian. A few weeks later, Samantha suffered a similar attack and ended up in Tampa General Hospital.

Her kidneys and liver shut down and she fell into a coma.

They could relate to violent coughing attacks and what it feels like to be drowning.

They had spent more time in children's hospitals than in school.

There is no specific timeline or rule on including your partner into your medical regimen; however I must emphasize the benefit (to you, as well as the relationship) of welcoming that person into your support system.

It will impact factors such as honesty, openness, ability to welcome supportive assistance, participation in healthy boundaries and assertive communication, as well as engaging in vulnerability and trust.

Cystic fibrosis is known as a devastating disease that causes severe respiratory problems and interferes with digestion because of thick mucous in the lungs.

Brian shared his good fortune: Eight years after a double lung transplant, he was doing fine.

But like anybody with cystic fibrosis, he knew you can't take anything for granted. It didn't matter that Brian, at 25, was seven years older. In November, Brian's lungs failed and he landed in the emergency room at a hospital near his home in West Palm Beach.

Telling people you have CF is a personal choice, and you actually do not have to disclose it to every person you meet.

With that said, maintaining our health to reduce many of the unwanted CF symptoms means that we have to regularly participate in taking medications, completing treatments, and engaging in good hygiene practices.